Our Mission to Help Those with Fibromyalgia Centers Around Research

The National Fibromyalgia Association has always been interested in helping pursue research to find answers about, and treatment for fibromyalgia. We have been assisting and facilitating research and participating when possible since our inception. One of the ways we have helped is through focus groups and patient and physician surveys, and market studies. It is through research facilitation that we work every year to reach our mission.

Current Research Studies

We have partnered with a number of studies across the World to actively support medical research. Below are the active research studies for 2017-2018. The results of these studies will be shared here when they are published. Click the links below to learn more about each study or to become involved.

PhD candidate Deidre Molchan (attending Walden University) has collaborated with the NFA to investigate the relationship between laughter and fibromyalgia symptoms. Study participants must be at least 18 years or older and have a diagnosed fibromyalgia syndrome as confirmed by a health care provider. The study involves two weeks, where participants assess pain levels and their emotional state three times daily while documenting all instances of laughter. This study can be completed by email or over the phone. Compensation of $50.00 available to participants who complete the study. If you are interested or would like further information please contact researcher Deidre Molchan via email at deidre.molchan@waldenu.edu or 703-967-0609

Brigham and Women’s Hospital, a Teaching Affiliate of Harvard Medical School, is conducting a research study to help people manage their fibromyalgia symptoms by implementing daily yoga based exercise. This study follows a number of small studies showing decreased pain and other symptoms in FM with yoga. This study seeks to learn how daily yoga exerts its effect physiologically, and how the different symptoms in fibromyalgia are related to each other. Those interested in participating in this study should be local to Brigham Women’s Hospital as participants will be enrolled in a non-pharmalogical 7-week program. Those interested can call for a phone screening at 617-732-9014 or email at asanaStudy@partners.Org

The Health and Life Science department at Glasgow Caledonian University is conducting a study into the journey patients take from presenting with their first symptoms through to receiving a diagnosis of fibromyalgia syndrome and subsequent treatment. This study requires participants are aged 18 years and over and have received a diagnosis of fibromyalgia. The study involves an online questionnaire which includes a series of surveys asking about this journey including what happened immediately following your diagnosis and what treatments were prescribed by your healthcare provider and which ones you researched yourself. Find out more and join the study at this link.

Research Results

The National Fibromyalgia Association is dedicated to sharing research results with our community.

Redheads and Pain

by Diane McKay,

I was only recently diagnosed with fibromyalgia, but right away I realized there seemed to be a disproportionate number of redheads featured in fibromyalgia articles and films, which triggered me to remember and consider what I had heard about redheads feeling pain more acutely than others. Could there be a corollary? Namely,
If redheads truly are hypersensitive to pain, could it render them more susceptible to a nerve disorder like fibro?
I don’t remember, as a …

Fibromyalgia Medication Survey Powerpoint

Stay tuned for results from our 2016 partners.

These studies have closed and are no longer taking new participants. As part of our commitment to research, our research partners agree to share their results once the articles are published.

Stanford University System’s Neuroscience and Pain Lab seeks to understand why pain is felt in patients with fibromyalgia. This study has taken pictures of the brain and spine using functional magnetic resonance imaging (MRI) in individuals with fibromyalgia. This study is closed.

The University of Texas at Austin partnered with the NFA on a research study entitled “Social Support in the Context of Rheumatic Disorders.” This study aimed to look at the support between romantic partners in which one member of the dyad has been diagnosed with a rheumatic disorder (i.e., fibromyalgia, lupus, rheumatoid arthritis, etc.). Specifically, the researchers are interested in examining how this support impacts both the patient’s and partner’s relational, health, and psychological outcomes. Participation in the study will contribute to a better understanding of supportive communication practices surrounding chronic and invisible illnesses.