Our Mission to Help Those with Fibromyalgia Centers Around Research

The National Fibromyalgia Association has always been interested in helping pursue research to find answers about, and treatment for fibromyalgia. We have been assisting and facilitating research and participating when possible since our inception. One of the ways we have helped is through focus groups and patient and physician surveys, and market studies. It is through research facilitation that we work every year to reach our mission.

Current Research Studies

We have partnered with a number of studies across the World to actively support medical research. Below are the active research studies for 2016-2017. The results of these studies will be shared here when they are published. Click the links below to learn more about each study or to become involved.

Brigham and Women’s Hospital, a Teaching Affiliate of Harvard Medical School, is conducting a research study to help people manage their fibromyalgia symptoms by implementing daily yoga based exercise. This study follows a number of small studies showing decreased pain and other symptoms in FM with yoga. This study seeks to learn how daily yoga exerts its effect physiologically, and how the different symptoms in fibromyalgia are related to each other. Those interested in participating in this study should be local to Brigham Women’s Hospital as participants will be enrolled in a non-pharmalogical 7-week program. Those interested can call for a phone screening at 617-732-9014 or email at asanaStudy@partners.Org

The Health and Life Science department at Glasgow Caledonian University is conducting a study into the journey patients take from presenting with their first symptoms through to receiving a diagnosis of fibromyalgia syndrome and subsequent treatment. This study requires participants are aged 18 years and over and have received a diagnosis of fibromyalgia. The study involves an online questionnaire which includes a series of surveys asking about this journey including what happened immediately following your diagnosis and what treatments were prescribed by your healthcare provider and which ones you researched yourself. Find out more and join the study at this link.

Research Results

The National Fibromyalgia Association is dedicated to sharing research results with our community.

Stay tuned for results from our 2016 partners.

These studies have closed and are no longer taking new participants. As part of our commitment to research, our research partners agree to share their results once the articles are published.

Stanford University System’s Neuroscience and Pain Lab seeks to understand why pain is felt in patients with fibromyalgia. This study has taken pictures of the brain and spine using functional magnetic resonance imaging (MRI) in individuals with fibromyalgia. This study is closed.

The University of Texas at Austin partnered with the NFA on a research study entitled “Social Support in the Context of Rheumatic Disorders.” This study aimed to look at the support between romantic partners in which one member of the dyad has been diagnosed with a rheumatic disorder (i.e., fibromyalgia, lupus, rheumatoid arthritis, etc.). Specifically, the researchers are interested in examining how this support impacts both the patient’s and partner’s relational, health, and psychological outcomes. Participation in the study will contribute to a better understanding of supportive communication practices surrounding chronic and invisible illnesses.