How the NFA has been serving the community

The National Fibromyalgia Association (NFA) is the most trusted {501(c) (3)} non-profit organization-serving people with fibromyalgia – a chronic pain disorder that affects an estimated 10 million people in the United States. Headquartered in Orange County, California, the NFA develops and executes programs dedicated to improving the quality of life for people affected by fibromyalgia. The NFA focuses on patient support and education, awareness outreach, healthcare provider education, patient advocacy and the facilitation of scientific research. By providing an array of services, the NFA has helped to advance the understanding of this chronic pain disorder and has helped people affected by fibromyalgia to develop skills to regain control of their life, reduce isolation and restore hope.

Contributions made to the NFA help to support the following programs.

  • Assistance to Local Support Groups providing them with FM information (thousands of handouts and posters for health fairs and community events), national contacts and referrals, and assistance with establishing and maintaining support groups.

  • Patient Information and Education through international conferences, regional seminars, brochures, informational handouts, video and audiotapes, newsletters, and an award-winning website. Telephone assistance and online assistance gives patients one-on-one help.

  • Fibromyalgia AWARE Magazine was the first and only consumer magazine all about fibromyalgia that offers straightforward, insightful information and support.

  • Annual Fibromyalgia Awareness Day Proclamation Program is an international program established in 1999 to promote fibromyalgia awareness. Thousands of mayors and other elected officials have declared “Fibromyalgia Awareness Day” in their jurisdiction, proclaiming May 12th as a day to recognize the needs of people with FM. Local groups have used the NFA’s Awareness Day press releases to garner media coverage of local events and raise awareness of fibromyalgia and local support groups activities. Each year a new theme is designated for the annual awareness campaign creating messages of hope and understanding.

  • Leaders Against Pain Coalition is an annual workshop for fibromyalgia support group leader/advocate scholarship winners to take part in a multi-faceted program that provides, advocacy, media and leadership techniques. To date over 100 individuals have participated in the NFA’s LAP Coalition program.

  • Participation in Legislative Lobbying to raise research funding, fibromyalgia awareness, and improved patient protection under state and federal laws.

  • Continuing Medical Education Programs for healthcare professionals, including symposia, conferences, distribution of workbooks that cover recent fibromyalgia research, special CME journal programs inserted into Fibromyalgia AWARE magazine, and mailings to help educate medical professionals on the diagnosis and treatment of fibromyalgia.

  • Supporting Fibromyalgia Research through networking, fundraising, locating patients to participate in clinical trials, information distribution, and encouraging communication between researchers and the fibromyalgia community.

  • An Ongoing Media Presence insuring coverage of fibromyalgia and related topics on TV, radio (public services announcements), magazines, and newspapers. The NFA provides press releases, updated and credible source materials to encourage and assist journalists, and has developed a media library to track fibromyalgia media exposure, note misinformation and promote accurate information.

  • Hosting Healthcare Professional and Scientific Symposia including presentations made by leading fibromyalgia experts on advances in research and how study outcome information can be utilized in treating doctors’ offices to enhance better quality of care.

  • Healthcare Professionals’ Education is promoted at the NFA exhibit booth, which is present at approximately six national medical society meetings each year. Folders distributed to HCPs contain scientific abstract information, medication brochures, a quick FM consult guide, patient information, such as Fibromyalgia AWARE magazine and FM informational brochures.

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