History of Fibromyalgia Awareness Day
Did you know that Fibromyalgia Awareness Day was started right here at the NFA in 1998? Since then millions of people have embraces May 12th as a day to share with others what it is like to live with fibromyalgia. Now, 19 years later the National Fibromyalgia Association is still working hard to bring awareness across the globe.
Here are some of our accomplishments over the last 19 years.
We started with the proclamation program that spanned ten years in which NFA ambassadors across the United States approached their local and national law makers to inform them of this condition called fibromyalgia.
We continued this grass roots outreach when we took this proclamation program to the courthouse in California in 2006 with the Pledge to Care in Sacramento with assembly member Donnelly who was chairman of the California Assembly Health Committee.
In 2008 Lights of Hope brought hundreds of people again to California’s capital where we commemorating the missing with candles. We shared our stores with each other and the world thanks to coverage in the Sacramento Bee.
It was actions like these that lead to the acceptance of fibromyalgia in states across America.
The NFA has also partnered with great singers and entertainers, such as R&B singer Tony Terry in 2010. For an uplifting end to the FAME (Fibromyalgia Awareness Means Everything) walk. These walks spanned four years and reached thousands of people across the country.
Fibromyalgia awareness day extended to include seminars with doctors like Dr Yunus in 2009.
This educational event concluded with a candle light ceremony and evening vigil. In 2010 we launched our Know Fibro speaking tour which traveled around the country talking to support groups and others about the importance of staying physically active.
2013 and 2014 Awareness day activities include an interactive video series called “Ask Lynne” in which FM community members submitted video questions and founder Lynne Matallana replied through a video sharing program.
Our 2015 actives created a wonderful Feast, Friendship & Fibro dinner where every fibromyalgia person across the globe could share their experience with fibromyalgia over a dinner with friends.
Now in 2016 we are so happy to announce the creation of Team aware: an on going collaboration between our spokesperson, Jenna Grillo, the NFA, and the Community Pain Center. We are working together to encourage people to support and help people with FM and Chronic pain.
2016 is the NFA’s 19th year of hosting National Fibromyalgia Awareness Day.
We could not do this with out the years of dedication from the fibromyalgia community. It is your willingness to help build awareness and support for people living with Fibromyalgia that keeps us going.
Please continue to keep our great work going by donating here.
Every contribution helps.
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