contact

contact1
Contact the NFA
Emails: Fibro Friends, Community, Media & PR:
nfa@fmaware.org
Address:
3857 Birch St. Suite 312
Newport Beach, Ca 92660
Social Media:
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YouTube
Google+
LinkedIn
Pinterest

Board of Directors:

Richard Matallana
Michael Seffinger,DO,FAAFP
Craig Kennedy
Founder: Lynne Matallana

The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.

Programs

The NFA has accomplished a great deal and continues to carry out a wide array of programs to meet their mission.

Programs have included:

Assistance to local support groups, providing them with FM information (thousands of handouts and posters for health fairs and community events), national contacts and referrals, and assistance with establishing and maintaining support groups.

Patient information and education through international conferences, regional seminars, brochures, informational handouts, video and audio tapes, newsletters, and a award winning website. Telephone assistance and online assistance gives patients one-on-one help.

The New! Fibromyalgia AWARE Magazine. For 10 million Americans, finding a reliable source of information about fibromyalgia has been almost as challenging as the illness itself!

Fibromyalgia AWARE, the first consumer magazine for people with FM, was published by the NFA from 2000 to 2012. Along with being a subscription magazine, it was also made available at Barnes and Noble bookstores. Today, Health Focus, Inc. now proudly publishes the next version of the magazine:The New! Fibromyalgia AWARE Magazine. The virtual issue of this award winning magazine still offers straightforward, insightful information and support for people with FM, but it now includes an interactive component, which allows readers to watch videos, enjoy picture galleries, or e-mail the author directly as they read the same high quality informational articles that has always been a part of AWARE magazine!

Annual Fibromyalgia Awareness Day, an international program established in 1999 to promote fibromyalgia awareness. Thousands of mayors and other elected officials have declared “Fibromyalgia Awareness Day” in their jurisdiction, proclaiming May 12th as a day to recognize the needs of people with FM. Local groups have used the NFA’s Awareness Day press releases to garner media coverage of local events and raise awareness of FM and local support group activities. Each year a new theme is designated for the annual awareness campaign creating messages of hope and understanding.

Leaders Against Pain, an annual workshop for FM support group leader scholarship winners, who take part in a multi faceted program that provides, advocacy, media and leadership techniques. To date over 325 individuals have participated in the NFA’s LAP Coalition program.

Participation in legislative lobbying to raise research funding, FM awareness, and improved patient protection under state and federal laws.

Continuing medical education programs for health care professionals, including symposia, conferences, distribution of workbooks that cover recent FM research, special CME Journal Programs inserted into Fibromyalgia AWARE magazine, and mailings to help educate medical professionals on the diagnosis and treatment of FM.

Supporting and facilitating fibromyalgia research through networking, fundraising, locating patients to participate in clinical trials, information distribution, and encouraging communication between researchers and the FM community.

An ongoing media presence insuring coverage of fibromyalgia and related topics on TV, radio (Public Service Announcements), magazines, and newspapers. The NFA provides press releases, updated and credible source materials to encourage and assist journalists, and has developed a media library to track FM media exposure, note misinformation and promote accurate information.

The NFA is committed to implementing efforts that will increase FM awareness, improve treatment options, facilitate new research, and develop and implement programs that will continue to provide hope for a better future for people affected by fibromyalgia.