FM Community Resources

Redheads and Pain

by Diane McKay,

I was only recently diagnosed with fibromyalgia, but right away I realized there seemed to be a disproportionate number of redheads featured in fibromyalgia articles and films, which triggered me to remember and consider what I had heard about redheads feeling pain more acutely than others. Could there be a corollary? Namely,
If redheads truly are hypersensitive to pain, could it render them more susceptible to a nerve disorder like fibro?
I don’t remember, as a …

Go Back to School with these Fibro-Friendly Tips

By Elizabeth Mesic
It’s that time of year. The weather is cooling, the leaves are changing, and the chaos of fall is starting back up again. It’s time for students, teachers, and, by extension, parents, to go back to school. And while a new school year is exciting, for those with fibromyalgia and other chronic health conditions, this hectic change can easily result in a combination of stress, flares, and fatigue. So how do we prepare ourselves for the upcoming …

Tired of Popping Pills for Pain?

By Roberta Fernandez, BCH, CI, CPHI
Pain. Just the word itself hurts—and causes major stress.
The sciatica shooting sharply down your leg.
The agonizing contractions of childbirth.
The constant aching and throbbing of that migraine.
The constant pain and exhaustion of fibromyalgia.
Drugs for that pain: Oxycontin, Vicodin, Percocet.

Thrive this Summer with these Great Tips from Fibro Bloggers

By Donna Gregory Burch
Ah summer! For many people, it’s time for cool dips in the pool, burgers on the grill and long walks on the beach.
But for those of us with fibromyalgia, the summer heat and humidity can cause our symptoms to flare and worsen.
Since so many of us struggle during the summer months, I decided to reach out to some of my fellow fibromyalgia bloggers and ask for their best tips for managing the challenges that …

National Fibromyalgia Association AMICA Award

In April of 2017, the National Fibromyalgia Association (NFA) Board voted to honor Mary P. Harper, the retiring president of the Fibromyalgia Association of Houston, with the NFA AMICA Award (the NFA’s Friendship and Good Works Award).

To read an interview with Mary Harper in which she gives some great advice for how to start and keep a successful support group running, click here.

10 Tips for Support Groups from the Retired President of the Fibromyalgia Association of Houston

Interview with Mary Harper by Elizabeth Mesic
Running a successful support group is no easy task, which is why we have contacted Mary P. Harper, the retiring president of the Fibromyalgia Association of Houston Inc., a nonprofit 501 (c)(3) organization. For 16 years she worked with her board to run this support group and she has given us a few tips for local support groups.

Do You Feel Like a “Health Hostage”™ Kidnapped by the “Chronic Illness Thief?”™

By Nancy Gordon, LCSW
Imprisoned in my body—that is exactly how I felt for too many years after a car accident. As I struggled with the shattering impact of fibromyalgia and a mild traumatic brain injury, I dubbed myself a “Health Hostage.”
My pain-filled days—and my sleepless nights—were consumed with the management of my physical symptoms. 

Think Your Doctor Ruled Out Lyme Disease? Probably Not!

Think Your Doctor Ruled Out Lyme Disease? Probably Not!
By Donna Gregory Burch

If your doctor did a thorough job, he or she probably tested you for Lyme disease before finally diagnosing you with fibromyalgia. You likely received a negative test result and thought that you’d ruled out Lyme as a possible cause for your symptoms.
But you’re probably wrong.
You can receive a negative test result for Lyme and still have Lyme disease. What many people don’t …

The Paradox of Pain: A Male Perspective

By: Gavin Levy

As young boys growing up, we are taught by society not to cry when we scrape our knee. If we bruised a knee when playing football, we learned how to hold the sensation of pain on the inside. In England you’ll hear the expression, “Grit and bear it,” and this is just what we did. So it can certainly knock a man’s ego when you cannot “grit and bear it.”
When the cycle of pain goes …

Working with Community Leaders

By Sharon Waldrop

How can I make a difference? This is what I wanted to know after being diagnosed with FM at the age of 24. I felt deeply wronged by this illness. After learning all I could about this syndrome, and finding several helpful treatment strategies, I wanted to know how I could help ensure a better future for myself and others with FM. The answer, I learned, is advocacy—reaching out to community leaders in support of FM …

New Research – Pain Relief from Vitamin D

New research finds achieving healthy vitamin D levels helps relieve symptoms of chronic widespread pain
by  Amber Tovey
A recent study published in the International Journal of Rheumatic Diseases discovered that vitamin D replacement therapy improved musculoskeletal symptoms, depression and quality of life among patients with chronic widespread pain.
Chronic widespread pain (CWP) is defined as pain persisting for at least three months. It differs from localized pain by both its distribution throughout the body and by the heightened pain …

Survival – The Mighty

Survival
Some days that’s all we can describe it as: survival. There are so many things we do to get through the day with fibromyalgia that go completely unnoticed by those without fibromyalgia. That is the nature of having an invisible illness.
Recently, the NFA partnered with The Mighty to ask our community of FM warriors what are the things you have incorporated into your day to get through it that go largely unnoticed by those around you who do …

Not Enough Time… and a good reason why

It’s 8:15 pm and I was just going to leave the office and head home. We had been talking today about my “Good Grief” blog and someone said, “Lynne do you realize that you haven’t posted anything since last April!? There are a lot of people who have posted replies and you haven’t made any comments.  You can’t let these people down! I thought you were going to do a post a couple of times a week?”
My heart sank.

Anything is Possible

My life had become a practice of patience.  I would tell myself, “ I can stand this pain for two more months,” and I would imagine that during that time I would find the reason for my pain and a way to make it go away.  For the next two months I would practice living life in a very structured and predictable way.  I would try to sleep as much and as late as possible (which wasn’t easy!) and then …

The Beginning of My Story

Pain:
Will change your life.
You will become stronger than you ever imagined.
Your heart will expand with compassion.
You will find true friends who will be your support.
Your priorities will focus on life’s real purpose.
Your new world will provide endless opportunities.
You will find comfort in balance and patience.
Your resilience will intensify.
And you will be nourished by the power of faith.
Lynne Matallana

April 2014
My …