By: Ilona Csécsei
Life with Fibromyalgia. My case happened in 2015. I am a photographer mother of 5 children. I live in an apartment with 4 of his 5 children all still need educated. So I really had to allocate the money. We left the father of the children to live alone. It was spiritual and economic terror for the 19 years we lived together. I live in Hungary.
One day I wake up to find that everything hurts,
and I could hardly move. The captivity of pain lasted a long time. I could hardly stand to work, so I’m a photographer who should go clean something in a condominium. There’s no elevator and buckets of water have to be taken up to the apt. upstairs and washed up, trash cans pulled out onto the sidewalk.
So everything hurt and as time went on and the pain didn’t go away, I went to the doctor. I went to see a rheumatologist, I went to maybe 5-6 doctors, but they found no organ lesions or only rheumatic lesions at a level appropriate to my age. In the meantime, time passed and I tried all sorts of drugs so that I could get to work.
Even my sleep cycle has been off, at midnight I am already intact and from 5 pm I sleep, but I wake up to muscle spasms in pain.
I gave up photography and cleaning. My children help with daily activities. I’m reading your page and I’ll take a lot of your good advice.