NFA QuestionsCategory: QuestionsAnyone with Fibromyalgia had COVID?
Robyn Riley asked 12 months ago

Curious if anyone with Fibromyalgia has had COVID and if so how has your recovery been? Recent studies have equated Long Haul COVID with fibromyalgia. I know many of us who had the vaccine went into a bad flare which I think is our immune system fighting not an adverse reaction(i by the way signed up for the CDC vaccine checker and am still receiving a periodic text asking how I am doing). Please if you’ve had COVID, let me know how it was and how you are recovering. I suspect that having it is worse than the vaccine.

2 Answers
Nanette answered 11 months ago

Hi I had covid in oct 2019. My Doctors did everything they could to help me get over the WORST cold ever. I was laid up in bed for 7 days and walking to my bathroom about 8 ft from my bed would wear me out. I slept most of those days away. Now that we know what I had it all makes sense now. As for my
long lasting ailments, I get winded easily, I get a lot of headaches, I mouth breathe more now.
I didn’t have too many side effects from the covid shots and yes the illness is definitely worse than the shots.

Alley answered 11 months ago

I got COVID in OCT 2020. I got the shot in April/May 2021 time frame. COVID was definitely worse than the shot. I lost my sense of smell and taste, had more night sweats/chills than usual, severe body aches, migraines, muscle cramping. The absolute worst was having no energy. It was all I could do to walk out to the barn and feed my animals every morning. I would pretty much sleep for the rest of the day until I had to walk out to the barn to give the animals dinner. And then it was straight back to bed. I felt like my body was a sack of bone and tissue that I was just trying to haul around. Thankfully my husband was home (with COVID) bc I wouldn’t have been able to keep my animals and myself fed and comfortable. Pure exhaustion. The symptoms were there for about three wks, the exhaustion was there for about six wks. I would advise getting the vaccine bc my worst symptoms went away after about five days post vaccine. I was lucky enough to not have any lasting symptoms other than increased temperature sensitivity.