Share My Story: NFA Member Stories
The views, thoughts, and opinions expressed in “Share My Story” belong solely to the author, and not necessarily to the NFA (National Fibromyalgia Association), their employees or other groups or individuals. Reference to any specific commercial product, process, or service, is for the information and convenience of the public, and does not constitute endorsement, recommendation, or favoring by the National Fibromyalgia Association.
The National Fibromyalgia Association Would like to thank all of you who have contributed to “Share My Story”
My Fibro Confusion
By Michele, This is my Fibromyalgia experience (posted in a Fibro group to get information - edited some for people who might know nothing about Fibromyalgia): Hi all. First I want to say, my heart goes out to you. [...]
Rotting on the Inside
I’m Shiloh, I’m Seventeen years old. I started having knee pain around August of 2024, and my mom and friends thought it was growing pains. I knew something was wrong. The pain traveled to my elbows, wrists, and ankles. [...]
Simple Actions Can Build a Fulfilling Life with Pain
By: Sheila Olson Effective communication is vital for navigating relationships and responsibilities while managing chronic pain. Be open and honest with friends, family, and colleagues about your needs and limitations. Practice active listening to ensure conversations remain collaborative and [...]
I’m Surprised at What I Can do
B y: Jen Grant, Growing up, life had always been full of vibrancy and activity. I thrived on new experiences and pushing my boundaries. However, at the age of 37, my world took an unexpected turn. I began experiencing [...]
A Family Affair
By: Phyllis Julian Searching for a diagnosis for my chronic pain 43 years ago, at the age of 30, I was greeted by skepticism from doctors, smirks from acquaintances, and fears of a future full of nothing but pain [...]
Water Therapy Exercise
My name is Andrea R Taylor. I'm 76 years old and was diagnosed many years ago with FM. I am a retired Children's Librarian and was a church pipe organist for over 35 years. Both careers required a physically [...]
$2.1 Million for Research
By: Valeri DeCastris Working with Kristen and Steve Thorsen and others including former Congressman John Porter of Illinois, I helped increase research spending on fibromyalgia syndrome by the National Institutes of Health by $2.1 million in the 1990s. I [...]
A Day In The Life Of Chronic Pain
By: Vickie Kean I hope this isn’t too long but I wanted folks to hear my story in hopes that it might save someone from having to jump through all the hoops I have over the years…just to get [...]